Wednesday, July 29, 2009

Trial of Starvation

Day One: Monday Aryssa woke up EARLY and fussy but doesn't want to eat. She did however take a little nap before we had to leave. Therapy was at 12 which was 11 1/2 hours since her last "forced" feeding in the tube. She was given pedialyte at 6 am and 9 am and then we went to therapy at 12. She was very fussy and not wanting to do anything for Miss Jodi. I couldn't help it... but I was very disappointed and very discouraged. I went in knowing that nothing would probably happen but I still had that hope deep down that she would just figure it out. Well she didn't, therefore I cried a lot. Sorry couldn't help it. I am just so ready for this to be over with. I pray and pray and no one is listening up there. We will see what day 2 will bring.

Day two: Tuesday Aryssa woke up about 8:30 she was in a pretty decent mood. She was a little fussy but nothing like she was yesterday. Therapy at 12:00 again. Jodi was able to get her take a couple of spoons of cereal when she mixed it to be really runny. Not much but at least it was an improvement from yesterday. She loves it when we put the little finger brush and message her gums. I tried to feed her some cereal and green beans at 4 and tried again at 8. She is just absolutely refusing anything that has food on it in her near her mouth. At midnight I got a medicine dropper and dropped 1 ml at a time into her mouth to get her to swallow. I was hoping since its been so long since she has eaten now (48 hours) she would connect swallowing with food in her belly. I did that for about 45 minutes so got maybe 2 ozs in her. We will see how she does in therapy tomorrow.

Day three: Wednesday Aryssa woke up in a great mood. Giggles and smiles all morning. I am thinking she just is NEVER going to get hungry again. We go to therapy and she will only water off a spoon. She lets us get a couple of spoons of formula in but immediately spits it back out. Jodi had recommend that we keep going with not feeding her except maybe her night feedings. I came home, thought about it and decided to continue to tube feed her. She is getting too skinny after 3 days of not eating. I realized that she has only been in therapy for a month now. I want to keep going to therapy and maybe try another trial period in a month to see if maybe she will get it then. She has improved tremendously from day one of therapy so maybe another month she will be ready. Everyone please keep praying and cross your fingers that Aryssa will start eating any day now.

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